Folie 1
Transcrição
Folie 1
Ethical arrangements in nursing homes Transdisciplinary Narratives Elisabeth Reitinger, Klaus Wegleitner, Katharina Heimerl, Andreas Heller, Sabine Pleschberger, Stefan Dinges IFF-Department of Palliative Care and Organisational Ethics University of Klagenfurt, Vienna BACKGROUND AIMS AND QUESTIONS Living and dying in dignity in nursing homes highly depend on the quality of ethical decisions (Wettreck 2005). Nursing homes are challenged by a significant change in their client-structure. Frail elderly people in need of care often suffer from dementia. Structural restrictions as reduction of staff and cost savings as well as family and team conflicts impose high pressure on working, living and dying in nursing homes. So the question how client-orientation in ethical sensible situations can be arranged is a challenge every day. Clients, their relatives, friends, professionals of the nursing homes as well as management and cooperating services are highly interested in processing these ethical questions in a balanced way (Heller, Heimerl, Husebø 2007; Kojer 2002). In order to address this issues, a transdisciplinary research project was undertaken to investigate what kind of ethical decisions are processed in nursing homes. Leading questions in our transdisciplinary multilogue were: ♦ What are the experiences with ethical decisions: Typical ethical situations, resources, conflicts, processes? ♦ Does the gender perspective have any impact on these situations? ♦ How can nursing homes as organisations deal with ethical decision making? RESULTS ♦ Ethical situations in nursing homes mainly include “every day decisions” that highlight the importance of the awareness for “tacit indicators”. Emotions and feelings are qualified for making this silence explicit. ♦ End-of-life care in nursing homes raises central ethical questions, especially: Should we leave dying residents in the nursing home or send them to hospital? Finding out the needs of dying persons with dementia and dealing with grieve of relatives and professionals after death. ♦ Concerning the gender issue it is interesting that empirical evidence shows its obvious significance on one hand. On the other hand it does not seem to be an important question in many ethical problems of the practitioners. ♦ “Talking about it provides relief” - this sentence has been a frequent feedback after the workshops about ethical issues. It shows a need within the interprofessional team to take time for ethical reflection and dialogue. ♦ Responsibilities for decisions cannot be taken over by a single person or professional in most of the cases. Therefore it is necessary to find out, who has to be involved into the process of decision making. “Transfer him to hospital...! No, leave him here!” CONCLUSIONS Interdisciplinary ethical rounds encourage professionals to bring together their different perspectives, find typical patterns and work on clarifications of next steps. Gender has to be integrated as a category of observation more closely (Frey 2003). Elements of organisational ethics in nursing homes have to take the issues of “care ethics” (Conradi) seriously. Management has to take over responsibility to organise time, space and social arrangements for discussing ethical issues. This helps finding appropriate common agreements in ethical decisions (Heller, Krobath 2003). Angela Sommerhoff METHODS AND SAMPLE Situations and examples for ethical decisions have been elaborated as narratives (e.g. Bruner 1987) within transdisciplinary workshops. Transdisciplinary cooperation in this context encompasses participation of an interdisciplinary research team, management and interprofessional care teams. 10 Workshops were conducted in three Austrian nursing homes with different organisational structure and institutional background. Participants were invited to discuss critical situations from their everyday work life. Overall 36 situations have been referred. Typical situations have been identified after reflecting, analysing and trying to discover basic contradictions that cause the raised conflicts. These stories have been combined and reformulated so that no involved person could be identified. Issues that affect organisational belongings have been presented for group-discussions with management. Presentations on different hierarchical levels involved a variety of perspectives and gave actors the opportunity for diversity in interpretation (Reitinger 2008). “How can we, as organisation understand your needs,…?” © PlanSinn References Funding Bruner JS (1987): Life as narrative. Social Research, 54, 1-17 Conradi E (2001): Take Care. Grundlagen einer Ethik der Achtsamkeit. Frankfurt: Campus Frey R (2003): Gender im Mainstreaming. Geschlechtertheorie und -praxis im internationalen Diskurs. Königstein: Ulrike Helmer Heller A; Heimerl K; Husebø S (Eds.) (2007): Wenn nichts mehr zu machen ist, ist noch viel zu tun, 3.ed. Freiburg (Br.): Lambertus Heller A; Krobath Th (Ed.) (2003): OrganisationsEthik.Organisationsentwicklung in Kirchen, Caritas und Diakonie. Freiburg (Br.): Lambertus Kojer M (Ed.) (2002): Alt, krank und verwirrt. Einführung in die Praxis der palliativen Geriatrie. Freiburg (Br.): Lambertus Reitinger E (Ed.) (2008): Transdisziplinäre Praxis. Forschen im Sozial- und Gesundheitswesen. Heidelberg: Verlag für Systemische Forschung - Carl Auer Wettreck R (2005): “Das ist doch mein Leben.”Selbstbestimmung, Vernetzung, Entscheidungsqualität in der letzten Lebensphase. In: Zeitschrift für Ethik in der Medizin 15, S. 87-96 The project has been funded by the Austrian Federal Ministry of Science and Research, Department of Social Sciences. Project duration: April 2005 November 2007. For further information about the research-programme please visit: http://www.trafo-research.at/ Acknowledgments We would like to thank our colleagues Larissa Krainer, Erich Lehner, Marina Kojer, Christian Metz, Georg Zepke, Anna Hostalek and Ilona Wenger for inputs, critical comments and other support during the process of the study, as well as Angela Sommerhoff and PlanSinn for the pictures. Contact of Presenting Author Ass. Prof. Dr. Elisabeth Reitinger Department of Palliative Care and Organisational Ethics IFF-University of Klagenfurt Schottenfeldgasse 29/1, 1070 Vienna, Austria [email protected]